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Showing posts with label Deep Brain Stimulation. Show all posts
Showing posts with label Deep Brain Stimulation. Show all posts

Wednesday, June 01, 2016

Brain Surgery: Two Year Anniversary

Here we are at the crossroads of my 2 year anniversary of having my Deep Brain Stimulator put in and not only that but I am now 9 Months seizure free ^^ Insert big woot woot here ^^ and I'm going to try to write again. 


Recently, I found a friend in the writing world who, not so coincidentally, (because I don't believe in coincidence) is also celebrating her 2 year anniversary from having brain surgery and chronic pain issues. She and I have been corresponding over the past week pretty in depth about our situations and recovery and how writing has been a constant in our lives before and after our surgeries. I so admire how she has used writing as a tool for healing both physically and emotionally from her circumstances. Writing was something that became difficult for me because I had a hard time stringing together coherent thoughts for a long time after the stroke that I became so discouraged with writing that I gave up for a long time. I did not give up reading however, that has stayed constant in my life and because of that my devotional time in God's word has stayed present, probably more so than ever before, and also I've read through so many books that I never thought I would pick up before. 

One day about 3 months ago I got really frustrated with something I was reading because I just couldn't fully understand it without creating some sort of info graph to go along with it so I did what I haven't done in a long time, I pulled out the old journal. This time I wasn't using my journaling as a vent for my feelings or emotions at the beginning, I simply was writing out thoughts about what I was reading and creating an info graph to go along with the concepts I was reading to help me along.  I soon realized that the longer I journaled through the book I inadvertently was also sharing my emotions and feelings about my struggles with information processing in my journal. Funny how that happens. I kept up the journaling with the next book I read because I realized that the more I read and put things to paper as I was reading the better I was able to string together coherent thoughts so this process has become like therapy for me.  

My new friend's encouragement has sparked in me a desire to try again. So this is hopefully the beginning of a new era for the blog. I can't make promises but I want to keep things fresh here, honest, open, and inviting. I will share what's going on in my world with JW & our twins, the silly stuff that happens here on our small farm and I would also like to share with you the things of God that are going on all around us; what He's doing and how we can choose to see Him and share Him in the midst of a lot of pain and crazy all around us.

Will you join me every Friday for a cup of coffee and a post update? I will update the blog sometime Thursday night so it will be fresh on Friday. 

For my friend's writings you can visit: The UNEDITED Movement Blog Look for Alyssa Landreth's posts 
Or 

Monday, February 02, 2015

{{Beauty Marks}}

Synonyms for the work MARK include the following>>
Imprint
Record
Scar
Signature
Brand
Bruise
Autograph
Representation
Trademark
Label

 How do we make our Mark

I find it interesting that we automatically think of things such as scars or bruises when we think of that which can make our mark. Can we view that part of our identity as potential for growth? Change? Good? 

That was the challenge I was given last June when I had my hair shaved for the 2nd time in preparation for my Deep Brain Stimulator to be put in. Never in my dreams did I plan to be needing a Medical Alert ID of any sort but that's where I found myself. I sat in my hospital bed gawking at the pamphlets the nurse gave me... 

Really?! The options online didn't get much better; gold plated, barbie purple, and expensive!! I put it off month after month because I just didn't want to order one. Finally, my husband lovingly told me it was time so I went to my friend Becky at her Farmgirlpaints Etsy shop to see if there was any way she could make cuffs that had the Medical Alert Symbol on them. She said YES! 


I need to tell you about this because it doesn't just affect me-it may affect many of YOU and we have a chance to re-write the label. We are not just people "with" this or that disease or disability. We are individuals with unique gifts and abilities. So this is NOT just about beautiful cuffs that carry valuable medical information for me. It's about identity. Who we are is not just on our label at the drugstore, our medical records or on our medical alerts; those are just tools in our toolbox that can equip us to reach out and make beautiful things happen in our spheres of influence.

You might be thinking...ok I get it, you have a computer in your body, of course you need a medical cuff. Do I? Here's who American Medical ID.com says should wear an ID::

  • Food, Drug or Insect allergies
  • Cardiac problems (angina,arrhythmias,atrial fibrillation,pacemakers) 
  • Pulmonary Conditions(Asthma/COPD)
  • Kidney Failure
  • Diabetes, blood disorders
  • Alzheimer's/Memory Impairment
  • Blood thinners/ Anticoagulants (Coumadin/Warfarin)
  • Emphysema/Breathing disorders
  • Rare diseases
  • Epilepsy/Seizure disorder
  • Hearing, sight or mentally impaired
  • Surgery, transplant and cancer patients
  • Clinical trial participants
  • Special needs children
  • Hypertension
  • Stroke risk
  • Sickle Cell Anemia
  • People taking multiple medicines
  • Anemia
  • Tourette Syndrome
Does it even matter? 


American Medical ID recently surveyed emergency medical professionals ranging from first responders to paramedics. Among the results: 
  • More than 95 percent of respondents look for a medical ID during emergencies.
  • More than 75 percent look for a medical ID immediately upon assessing a patient.
  • 95 percent look at the patient's wrist to find a medical ID, and 68 percent look for an ID on the patient's neck. *http://www.americanmedical-id.com/about_us/frequent.php

The cuff on top was given to me as a gift from my sister when I went in for surgery and I love it so much that I went back to Becky's shop for my ID cuff. I am thrilled to help spur you on to getting your Medical Alert ID too and give you a coupon to use on your very own cuff from Farmgirlpaints

{{Please use the code "MedicalAlert15" to receive 15% off your purchase. This is a 5 day open so coupon 
ENDS 2/6/15}}  

May these physical labels we wear be reminders for us...
We are so much more than flesh and bones. We carry purpose within our deepest hurts and sometimes we have to remember the hurt to know exactly how to reach out and unveil the beauty waiting to thrive and be pulled away from the dark matter. 

Blessings, 
-CW 

Read The Bible With Me>> 


Ephesians 2:10Amplified Bible (AMP)

10 For we are God’s [own] handiwork (His workmanship), [a]recreated in Christ Jesus, [born anew] that we may do those good works which God predestined (planned beforehand) for us [taking paths which He prepared ahead of time], that we should walk in them [living the good life which He prearranged and made ready for us to live].
Moreover [let us also be full of joy now!] let us exult and triumph in our troubles and rejoice in our sufferings, knowing that pressure and affliction and hardship produce patient and unswerving endurance.
And endurance (fortitude) develops maturity of [c]character (approved faith and [d]tried integrity). And character [of this sort] produces [the habit of] [ejoyful and confident hope of eternal salvation.
Such hope never disappoints or deludes or shames us, for God’s love has been poured out in our hearts through the Holy Spirit Who has been given to us.
While we were yet in weakness [powerless to help ourselves], at the fitting time Christ died for (in behalf of) the ungodly.



*Special thanks to my cutie pie models for having fun with my cuff so I can avoid a selfie! :D They rocked it!